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Friday, August 26, 2011

A big scare about my kidneys

     I went to my endo and had my a1c test, it was very very high, literally double what it ought to be. I was not happy that despite my meager efforts I had gotten worse since A was born. I got into gear, began checking again and decided to give minimed, and their carelink system a second shot as well as getting back on the CGMS. I spoke with my endo's office today and learned that a test was done incorrectly and they needed to re-run it with a fresh sample. Getting more details from the nurse I learned that it looked as though I had developed a new complication from uncontrolled diabetes, as there was significant protein detected in my urine.
     Later this morning I go give a new sample for a slightly different test to see if I need to go on a new medication the rest of my life. Naturally I went through lots of feeling from shock, anger, fear, despair, and now am just anxious. This is not a 100% guarantee that the new test will show I need a medication but I am so very scared I will.
     If anyone is reading this as a newly diagnosed diabetic, here is a glimpse into your future if you choose my path, and don't follow doctor's instructions to watch your diet, take your medicines, and CHECK YOUR BLOOD! This is happening because I let taking care of everyone and everything be above me and letting the testing and the daily maintenance of diabetes slide to last in my priorities.
     This is a pathetically needed scare to get me on track. My first motivation after nine years with Type 1 was learning I was carrying my daughter. This time I want to be in control because of me and my life, not just because another life depended on me.
     So, here I sit in the wee morning hours, unable to sleep. My mind won't slow down. I'm scared, anxious, and upset. Hell I halfway believe I don;t deserve to feel so bothered by the inevitable complication because I went so long letting it all go by the wayside.

Sunday, August 21, 2011

A little girl.

There once was a little girl born to a mommy and daddy who at first were convinced they were having a boy. When the nurse showed them that a little baby girl was going to be born, they laughed and cried and the mommy knew the little girl's name instantly! They named her that very instant, and began to prepare for the girl to arrive. Months passed and the parents got everything ready. One fall day, the mommy went to the doctor and was told that the girl looked like she wasn't growing anymore and she needed to arrive immediately. The next day after a long labor and finally a surgery the girl was born, but she had a little trouble. After a rocky start, the little one went home with mommy and daddy. There she grew and thrived. A few months later, her heart doctor (whom she had because of that rocky start) noticed something on one of the special pictures the doctor had taken of her heart. he noticed there was something that should not be there, and the girl had to see another few doctors. Eventually the mommy, daddy, and doctors made the choice to do an operation, so the little girl would stay healthy and be able to grow normally. That was done, the doctors and the parents were happy. The girl once again continued to grow. She learned to sit up, to crawl, to feed herself, and to jabber, sounding much like a murloc and a wookie combined!
     Now this girl, whose mommy and daddy love her so very much, are just as happy as can be. This girl who they thought was boy has brought so much joy to their lives. The daddy comes home from work every day and sees the smiles and hears squeal of happiness from his little angel. Every morning the mommy wakes to the same smile and squeal. They are living right in the middle of their happily ever after!

Thursday, August 11, 2011

The Boog and Genetics

Booger had her appointment with a geneticist today. It went quickly and nothing in her physical appearance made the doctors think anything was going on. However, the RCDH was a bit of a red flag, so they decided to order some blood work done. Her other congenital anomalies are not noteworthy according to them. So, we are now in the waiting period for the results from a chromomal test to see whether or not she has anything extra, missing or if everything is normal.